dinner next week is covered

thanks for all the offers for dinner. Dinner for all 5 days next week has been covered by various people. Maeve's a lucky girl to have family and friends who love her so much! If you'd still like to cook for her, you can do round 3 or round 4 chemo. will update accordingly. For next week, please pray that she'll be able to withstand the chemo. She didn't handle it too well, with diarhoea, painful throat, high fever and coutns that dropped too low leading to a transfusion and an extra hospital stay. Pray also for protection for the rest of the family. Bernard is recovering, Paige still coughing and sneezing and very congested, despite taking medicine for more than 2 weeks. Maeve having runny nose and cough as well. I'm amazingly well, i believe due to supernatural protection! pray i continue to remain well as i can't afford to fall sick. my helper is also super strong ( i make her drink chicken essence too!!) and thank God for that as she is Paige's surrogate mum everytime we go to hospital.Pray for my neck and back, its all gone stiff and hurts all the time, I guess due to long sessions of pumping milk and sleeping in awkward positions (maeve needs to stroke my hand to sleep and needs to hold my hand whenever she's scared, which is a lot of the time), so one arm is immobilised most of the time.
I've been reading up as much as possible on Burkitts lymphoma (stage 2) and now know that it is highly treatable, up to 85% survival rate. On one hand, that is good news, but on the other, i wish i didn't need to think of it in terms of survival rate, because the hard reality is, what if we fall into the 15%? that sense of urgency, sense of time is running out, is always there, and i get constant nightmares about it. So I live everyday with my little girl like its the last day. Who cares whether her chinese is good? who cares whether she can count beyond 20? suddenly everything doesn't seem quite as important anymore. We have "school" at home, only because she likes it and loves learning. I guess before her head got shaved, it was easy to forget that she has cancer, but now with a shorn head, the reality slaps me in the face. I only pray that we'll be numbered amongst the cancer survivors with no incidence of relapse, and that she'll lead a normal life soon.

Hair today, gone tomorrow

The fishball family!


Fairy Maeve, Fairy Paige

Our journey..with you

We start round 2 chemo next monday. Was hoping to be home for at least a week to rest, but I guess the sooner we complete chemo, the better. As Maeve says, she's drinking lots of liquids so that the bad soldiers in her will slip and slide and fall on their bums and out of her butt!! Many of you have been soldiering on with us, providing not only prayer support, but very practical help. For this we are immensely grateful. Because family and friends have been cooking lunch and dinner for her, Maeve never had to eat hospital food at all throughout each hospital stay. She hates hospital food and if home-cooked food offers her some comfort, then we'll do our upmost to ensure she has home-cooked food (doesn't matter which home!)So for those of you who can cook (or cannot cook, but can transport food), let me know. Lunch is settled by mum and dad, so offers for dinner are welcome.
Thanks also to those who have bought her loads of toys, art and craft stuff,books and various dress up stuff. Its like christmas came early! lots of the toys etc have come in very handy for our long hospital stays. the DVD player is a God-send coz hospital only has cartoon network and hence ben 10, tom and jerry. yuck! The portable sing-a-long CD player cum microphone not only entertains her, it also entertains the other chemo kids. They can sing and dance despite having chemo! We bring along her fairy wand and just about everything but the kitchen sink to entertain her and transform her hospital room each time so it doesn't look like a hospital room!
Thanks also to those who have volunteered to do milk runs, grocery, run errands such as buy milk bags, diapers, and appear at the drop of a hat to entertain maeve when she's feeling down after some procedure or other. We are very blessed to have friends and family such as you. Thanks also for looking after the rest of the Low family, providing dinner for us, cleaning our house, sending us cards and letters to encourage us. They mean a lot to us.

Lap 2 starts on Monday!

"Results are good today which means we start round 2 chemo on Monday. Her bone marrow is producing its own cells already."

Praise the Lord!

Check up

"We are going for check up later. Pray that everything is ok. She has to have her usual finger prick. Sigh. She would not be too happy about that. Pray no repeat fevers any more."

these are pics of Maeve in her bob.
AND....pcitures of Paige! I haven't uploaded pictures of Paige at all, so here she is, at 5 mths.

images of her

Since we're back, thought I'd just upload pictures of maeve taken at the hospital, so that those of you praying for her will be reassured. she looks just fine!These were taken after abdomen surgery, prior to chemotherapy. will upload pics of her bob hair-do soon.it won't remain long as her hair is dropping rapidly now which irritates her a lot. She has since asked to to shave it all off, which we'll be doing in the next couple of days. Thankfully, she is still really young, so thinks that losing her hair is part of growing up, like her cousin losing baby teeth at 6 yrs old!